Well hello there!

Hello, my name is Tamsen, and my husband and I have 2 daughters. Here I'll call them Bug, 4, and Bean, 2. Bug has Lennox Gastaut Syndrome, which has caused her to be profoundly mentally and physically challenged. She uses a wheelchair, is feeding tube dependent, and is non-verbal. Early on, we determined that we'd try to be as much a "normal" family as possible, and that we'd include Bug in all of our activities and travels. I think we've been pretty successful at it, and want to share with other families like ours some ideas and items that have made it work for us. I don't expect my writings here to be ground-breaking, edge of your seat reading. I'm sort of looking at this as the manual I wish they'd given me the day Bug was born. I figure if I can help one new special family realize that this is not the end of the world, I'll be happy.